For Families It has been said that brain injury does not just touch the individual, but the entire family: parents, spouses, siblings, grandparents, and even extended family members. Family and friends often share, in some sense, the experience of trauma, loss and recovery with the person who has the brain injury. The role of family, friends and advocates is not to be minimized; they often influence the recovery process and ultimate outcome in brain injury.	IBIA Activities The IBIA provides assistance to consumers, families, and providers in locating facilities around the world appropriate to persons with brain injury and disseminating educational material. The IBIA conducts Family Programs in conjunction with its biennial World Congress on Brain Injury.
	What You Should Know Articles Veneri, Anna, "Implicazioni psico-sociali Punto di vista delle famiglie" Information about Brain Injury Brain Injury Association: http://www.biausa.org/Pages/What%20is%20Brain%20Injury.html The Brain Injury Information Network: http://tbinet.org Centre for Neuro Skills - Traumatic Brain Injury Resource Guide: http://www.neuroskills.com The Dana Alliance for Brain Injury Initiatives: http://www.dana.org *(See also their online radio series "Gray Matters" at: http://www.dana.org/books/radiotv) Educating Educators About ABI: http://www.abieducation.com ERRIS - Enhancing Rehabilitation Research In the South: http://erris.med.virginia.edu/ Head Injury Hotline: http://www.headinjury.com/ Headway ­The Brain Injury Association (UK): http://www.headway.org.uk/default.asp?step=4&pid=3 Mental Health Net: http://www.mhnet.org/ Neurolaw: http://www.neurolaw.com/brain.html Neurosurgery On-Call: http://www.neurosurgery.org/pubpages/patres/patientrsrcsum.html SafeUSA: http://www.cdc.gov/safeusa The Stroke and Traumatic Brain Injury Resource Center http://www.abledata.com/Site_2/stroke.htm Whole Brain Atlas: http://www.med.harvard.edu/AANLIB/home.html   Where To Go For Help Association Resources Brain Injury Association: http://www.biausa.org Brain Injury Association of Alberta: http://www.biaa.net Brain Injury Association of Nipissing: BIAN: http://travel.to/brain Brain Injury Association of New Zealand: http://www.brain-injury-nz.org The British Columbia Rehabilitation and Recovery Centre: http://www.bcrrc.com The British Institute for Brain Injured Children: http://www.bibic.org.uk Canadian Brain Injury Coalition: http://www.cbic.ca/ Head Injury Society Waikato (New Zealand): http://whis.nzl.org Headway ­The Brain Injury Association: http://www.headway.org.uk Headway Illawarra, Australia: http://www.headway.org.au Headway Victoria, Australia: http://www.headwayvictoria.org.au H2000TBI & Brain - Trauma Cranico, Italy: http://www.citinv.it/associazioni/H2000/tbi/homepage.html Kessler Institute for Rehabilitation (The Patient Link): http://www.2patientlink.com/English/2patientlinkkessler.htm Medscape from WebMD: http://www.medscape.com National Center for the Dissemination of Disability Research: http://www.ncddr.org The National Rehabilitation and Rediscovery Foundation, Inc.: http://www.nrrf-roh.org Northern Virginia Brain Injury Association: http://www.nvbia.org Vancouver Island Head Injury Society: http://www.bc1.com/~vihis/ The Violence and Brain Injury Institute: http://www.vbii.org World Association of Persons with Disabilities: http://www.wapd.org   Patient and Family Advocacy Resources Children's Health – The Institute for Child Health Policy: http://www.ichp.edu General Patient Advocacy – Families USA: http://www.familiesusa.org Patients with Disabilities – ASIL Guide for International Human Rights Law: http://www.asil.org/resource/humrts1.htm Patients with Disabilities – Conductive Education in South Australia: http://www.pracsmart.com/CEA.html Patients with Disabilities – Disability World Magazine: http://www.disabilityworld.org Patients with Disabilities – Global Applied Disability Research and Information Network: http://www.gladnet.org Patients with Disabilities – Inter-American Institute on Disability: www.iid@iidisability.org Patients with Disabilities – National Collaborative on Workforce and Disability For Youth: http://www.ncwd-youth.info Patients with Disabilities – Through the Looking Glass: www.lookingglass.org Patients with Disabilities – Transitional Learning Center at Galveston: www.TLCRehab.org Patients with Disabilities – Trust for the Americas: http://www.trustfortheamericas.org/english/ict/disabilities/ Patients with Disabilities – The UN and Persons with Disabilities http://www.un.org/esa/socdev/enable/ Patients with Disabilities – WorkSupport.com http://www.worksupport.com Policy – U.S. Department of Health & Human Services' New Freedom Initiative: http://www.hhs.gov/newfreedom Policy – The National Association of State Head Injury Administrators: http://www.nashia.org Policy – Traumatic Brain Injury Technical Assistance Center: http://www.tbitac.org   Other Related Association Resources American Association of People with Disabilities: http://www.aapd-dc.org American Brain Tumor Association: http://www.abta.org American Psychiatric Association: http://www.psych.org American Psychological Association: http://www.apa.org American Society for Adolescent Psychiatry: http://www.adolpsych.org The Brain Tumor Society: http://www.tbts.org Coma Recovery Association: http://www.comarecovery.org The Dana Farber Cancer Institute: http://www.dana-farber.net Indiana Institute on Disability and Community: http://www.iidc.indiana.edu The International Association of Psychosocial Rehabilitation Services: http://www.iapsrs.org National Alliance for the Mentally Ill: http://www.nami.org National Brain Tumor Foundation: http://www.braintumor.org National Institutes of Health: http://www.nih.gov National Institute of Mental Health: http://www.nimh.nih.gov National Institute of Neurological Disorders and Stroke: http://www.ninds.nih.gov Pyramid Educational Consultants, Inc: http://www.pecs.com   Additional Resources Braintrust.org–The Healing Exchange: http://www.braintrust.org Centers for Disease Control (use Search for specific information): http://www.cdc.gov Commonwealth Carelink Centres (Australia): http://www.commcarelink.health.gov.au Coastline Community College (California) - Acquired Brain Injury Program: http://coastline.cccd.edu/~spcprgms/abi.htm Coastline Community College (California) - Cognitive Retraining Specialist Program: http://vcs2.ccc.cccd.edu/crsprgm/ College of Direct Support - for Direct Support Professionals: http://www.collegeofdirectsupport.com/ The Danish Council of Organisations of Disabled People: http://www.disability.dk/ Disability World (Scotland): http://www.disabilityworld.com Encephalitis Global: http://groups.msn.com/EncephalitisGlobal European Disability Forum: http://www.edf-feph.org/ Healthfinder: http://www.healthfinder.gov Human Rights Education Associates Resource Center: http://www.hrea.org/erc Internet Resources for Special Children: http://www.irsc.org The Perspectives Network Online: http://www.tbi.org South African National Lobby Group for People with Acquired Brain Injuries: http://www.gomemory.co.za/BIG Survivors Forum: Articles by Survivors of Brain Injury: http://www.lapublishing.com/BrainInjurySurvivorForum.htm The TBI Help Desk for Caregivers: http://www.tbihelp.org   On-line Support Groups/Chat Groups TBI Chat: http://TBIchat.org TBINET's Support Groups: http://tbinet.org/support1.htm   Establishing Brain Injury initiatives/organizations If you are interested in establishing a local brain injury organization or grass-roots initiative please contact: Alice Demichelis, Director of Family Programs (alice@internationalbrain.org)