Upcoming International Paediatric Brain Injury Society (IPBIS) Organized Webinars

Throughout the year leading up to the next International Paediatric Brain Injury Society (IPBIS) Conference, IPBIS will be organizing a series of webinars that will provide participants with a brief overview of the content of a pre-conference and symposium sessions that will form part of the program for the next IPBIS conference in New York City, dates to be announced soon (IPBIS2021).

Note: CME is available for all IPBIS Webinars in the series for a fee of $25 USD. The session is free if you do not want CME credits. Use the discount code NOCME in the payment portal at registration.

Date Title Speaker CME
March 11, 2021 at 11am Eastern Sensory Stimulation for Children and Youth with Disorders of Consciousness: Recommendations from the developing evidence-base Wendy Magee & Valerie Paasch Yes - costs $25 USD
May 13, 2021 at 11 am Eastern Authentic Partnerships: A Model for Building on Lived Experience to Co-Design Caregiver Supports After Pediatric ABI Caron Gan & Brenda Agnew Yes - costs $25 USD
July 8, 2021 at 11am Eastern Rehabilitation Services and Long-Term Discharge Planning for Febrile Infection-Related Epilepsy Syndrome (FIRES) Patients: A Single Institution Review Kim Davis & Kristen Fisher Yes - costs $25 USD
September 9, 2021 at 11am Eastern Using apps to develop Executive Function Skills Michelle Ranae Wild Yes - costs $25 USD

Sensory Stimulation for Children and Youth with Disorders of Consciousness: Recommendations from the developing evidence-base

March 11, 2021, at 11am Central

About the Webinar

Disorders of consciousness (DOC) can occur following profound acquired brain injury. Recovery patterns vary widely for this population with some individuals quickly emerging from a DOC and others remaining in this stage for a prolonged amount of time. There is a paucity of evidence-based interventions and assessments for this complex population, as pediatric-specific research is lacking in this area. This presentation will draw on emerging research and current clinical practice to provide an overview of sensory stimulation approaches that have been protocolized for intervention and research. It will also examine the current theoretical rationale underpinning these approaches. The importance of identifying individualized and personally relevant stimuli across multiple sensory domains will be discussed, with a particular focus on auditory stimulation. Current evidence from the pediatric literature regarding auditory processing of musical stimulation will be briefly reviewed. This will lead on to the introduction of an approach to use music as sensory stimulation in children and youth with DOC. Finally, the potential use of evidence-based sensory stimulation protocols to optimize care for children and youth with DOC will be explored.

About the Speakers

Wendy L. Magee, PhD, is Professor of Music Therapy at Temple University, teaching for both the Philadelphia and Japan campuses. She has practiced in neurological rehabilitation since 1988 as a music therapy clinician, researcher, manager and trainer (Australia, Ireland, UK and USA). As a clinician, Wendy’s experience lies with adults and children with complex needs stemming from acquired neurological conditions including traumatic brain injury, stroke, degenerative neurological illness and disorders of consciousness following acquired brain injury. Her publications span music therapy, music psychology, neuroscience, medicine, rehabilitation, psychology, and health sociology. The topics of her research include evidence-based practice in neurorehabilitation including a Cochrane Review; measurement tools in rehabilitation; music therapy and identity; and technology for practice and service delivery in health and education. Her primary research topic since 2012 has been developing and validating music-based measures for disorders of consciousness, based in her clinical work from 1990. Her current research collaborations include partners in the USA, UK, Europe, South America, New Zealand and China with a focus on assessment for Disorders of Consciousness.

Dr. Valerie Paasch is an Assistant Professor at Johns Hopkins University School of Medicine and a licensed psychologist at the Kennedy Krieger Institute (KKI). She serves as the Director of Behavioral Sleep Services in the KKI Pediatric Sleep Disorders Clinic and the Director of Postdoctoral Training in the KKI Department of Behavioral Psychology. Clinically, as a pediatric psychologist she provides therapy services to pediatric patients and their families to address emotional, behavioral, and adherence issues associated with chronic and acute medical conditions and rehabilitation needs. Within the field of pediatric brain injury, Dr. Paasch provides clinical consultation and intervention across the inpatient, outpatient, and interdisciplinary clinic continuum of care to children, adolescents, and young adults with brain injuries and their families. She also specifically works with and conducts research with pediatric disorders of consciousness, especially in the area of preference assessments and identifying salient stimuli that can be used with these patients to shape communication, increase motivation, foster family interactions, and improve quality of life.

Registration

The session is free if you do not want CME credits. Use the discount code NOCME in the payment portal at registration. If you want CME, you will have to pay $25 USD.

Click here to register.

CME Credits

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of CME Outfitters, LLC and the International Brain Injury Association. CME Outfitters, LLC is accredited by the ACCME to provide continuing medical education for physicians.

CME Outfitters, LLC designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Authentic Partnerships: A Model for Building on Lived Experience to Co-Design Caregiver Supports After Pediatric ABI

May 13, 2021, at 11:00am eastern

About the Webinar

In this webinar, co-presented by a family caregiver and clinician/researcher, we will trace the evolution of family involvement in pediatric rehabilitation care from: 1) doing FOR families, to 2) doing WITH families, and 3) learning FROM families.

Participants will hear what true family engagement looks like and ways to champion authentic partnerships in the co-design of family caregiver supports after pediatric ABI. Understanding what is important to caregivers, their questions, their fears, hopes and dreams helps clinicians and community providers to better understand the supports that caregivers want and need.

At the IPBIS symposium, the presenters will unveil the Support, Hope & Resiliency Education and Training Program for Caregivers of Acquired Brain Injury Survivors that was co-designed in collaboration with the Ontario Brain Injury Association. Qualitative and quantitative findings from workshop evaluations will be shared along with key learnings and recommendations for replication of this model in other settings/contexts.

About the Speakers

Caron Gan, RN, MScN, RP, RMFT, AAMFT Clinical Fellow is an Adjunct Scientist, Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital. Caron Gan is an Advanced Practice Nurse, Registered Psychotherapist, and Registered Marriage and Family Therapist. Professional experience includes over 40 years’ experience in healthcare, with 30 years at Holland Bloorview Kids Rehabilitation Hospital in Toronto, where she provided psychotherapeutic intervention to children, youth, and families living with the effects of acquired brain injury. She continues to keep busy with a part-time private practice that is dedicated to adults and couples living with the effects of brain injury, PTSD, and neurotrauma.

Caron is a frequent workshop presenter and keynote speaker at local, national, and international brain injury conferences on topics of family adjustment, family interventions, solution-focused rehabilitation, resilience, and sexuality after brain injury. Caron has also authored numerous peer-reviewed articles and five book chapters on Family Assessment and Intervention after brain injury. Her most recent contribution has been the Family Assessment and Intervention after Pediatric Acquired Brain Injury chapter in the Third Edition of Brain Injury Medicine.

Through the Bloorview Research Institute, she led the development of the Brain Injury Family Intervention for Adolescents (BIFI-A), which has been designated a leading practice through Accreditation Canada. She has trained over 400 clinicians worldwide around the BIFI-A protocol including roll-out of the Swedish version of BIFI-A across Sweden. She is also co-developer of the internationally validated Family Needs Questionnaire for Pediatric ABI (FNQ-P). In addition to its use at Holland Bloorview Kids Rehabilitation, the FNQ-P has been downloaded for use by 18 different countries and translated into 4 languages.

Caron is passionate about her work with caregivers after brain injury. Engaging caregivers with lived expertise and learning from them has been transformative in her professional life as a clinician and researcher.

Brenda Agnew is a wife and a mother of two sons. Her youngest son, Maclain, has severe cerebral palsy and profound hearing loss resulting from a condition known as Kernicterus, a brain injury that results from untreated jaundice. Since Maclain was diagnosed, she has been tireless in advocating for better systems and programs for children with special needs and their families. She is a proud member of both the CHILD-BRIGHT Citizen Engagement Council and the AACDPM Community Council, as well as an active member for other volunteer organizations such as CP-Net, Burlington Accessibility Advisory Committee and the PONDA network. Her full-time role is client liaison for Gluckstein Lawyers. She is also a school board trustee at the Halton Catholic District School board. Brenda feels there is so much value in being a part of the research community, whether it be as a participant, a parent of a child participating, or as a family advisor. There is much personal empowerment in having the ability to provide substantial input on how research priorities and projects are created and communicated, and how to incorporate and engage families. Relational research is a priority for her as a parent-partner, and she feels that there are great opportunities to create, foster, and grow relationships with parents and patients. It is for this reason that Brenda is very proud of her work with the Ontario Brain Injury Association and Holland Bloorview Kids Rehabilitation Hospital in the development of the Pediatric Caregiver Resource Guides and Workshop for parents of kids with ABI.

Registration

The session is free if you do not want CME credits. Use the discount code NOCME in the payment portal at registration. If you want CME, you will have to pay $25 USD.

Registration links will be posted shortly.

CME Credits

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of CME Outfitters, LLC and the International Brain Injury Association. CME Outfitters, LLC is accredited by the ACCME to provide continuing medical education for physicians.

CME Outfitters, LLC designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Rehabilitation Services and Long-Term Discharge Planning for Febrile Infection-Related Epilepsy Syndrome (FIRES) Patients: A Single Institution Review

July 8, 2021, at 11:00am eastern

About the Webinar

Febrile infection-related epilepsy syndrome (FIRES) has a devastating clinical presentation characterized by refractory status epilepticus without a clear structural, toxic, or metabolic cause. Though FIRES can occur at any age, pediatric populations tend to be primarily affected, with most cases occurring in school-age children. FIRES is difficult to diagnose and presents a significant challenge for clinicians with respect to treatment and seizure control. It is associated with a poor prognosis, with up to 30% of cases resulting in death. Most surviving cases present with refractory epilepsy and severe neurological sequelae, especially with younger age of onset. Systematic studies examining the chronic phase of FIRES and effective treatments options are lacking, limiting our understanding about necessary follow-up and family education needs. Our pediatric Level 1 Trauma center has collected longitudinal data on eight surviving FIRES patients, tracking outcome across the acute and long-term continuum of recovery. This webinar will provide a focused overview of FIRES within the context of a single case example. Clinical characteristics, relevant interventions, and key patient outcome information will be discussed.

About the Speakers

Dr. Kimberly Davis, PhD, is a Pediatric Neuropsychologist at Texas Children’s Hospital (TCH) and an Assistant Professor within the Department of Pediatrics at Baylor College of Medicine (BCM). She obtained her Ph.D. in Clinical Psychology from Purdue University, completed a clinical psychology internship at Primary Children’s Hospital and a two-year post-doctoral fellowship specializing in pediatric neuropsychology with an emphasis in rehabilitation at the Kennedy Krieger Institute and Johns Hopkins University School of Medicine. Dr. Davis is actively involved in service provision across the continuum of brain injury recovery, providing consultation on the Neurointensive Care Unit (NICU), serving as the Attending Neuropsychologist on the TCH Inpatient Rehabilitation Unit, and providing outpatient cognitive rehabilitation and psychotherapy within the outpatient Psychology Service. Research interests include characterizing the trajectory of recovery for children participating in acute inpatient rehabilitation and examining injury and psychosocial factors as predictors of recovery.

Dr. Kristen Fisher, DO, completed her medical training at West Virginia School of Osteopathic Medicine. She then continued her training in Pediatric Neurology and Neurodevelopmental Disabilities at Texas Children’s Hospital and Baylor College of Medicine, with an anticipated graduation in July 2021. Her clinical interests and training have focused on the treatment and long term neurodevelopmental implications of acquired brain injury, including meningitis and encephalitis, traumatic brain injury, Multiple Sclerosis and other demyelinating diseases, autoimmune encephalitis, and neuroimmunologic and neuroinflammatory disorders.

Registration

The session is free if you do not want CME credits. Use the discount code NOCME in the payment portal at registration. If you want CME, you will have to pay $25 USD.

Registration links will be posted shortly.

CME Credits

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of CME Outfitters, LLC and the International Brain Injury Association. CME Outfitters, LLC is accredited by the ACCME to provide continuing medical education for physicians.

CME Outfitters, LLC designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Using Apps to Develop Executive Function Skills

September 9, 2021, at 11:00am Eastern

About the Webinar

This session explores several common app features and how they can be taught to help users develop and apply executive function skills. We’ll explore and discuss two apps during this session — Inspiration Maps and StrategizeMyLife. These are just two apps within the recommended toolbox of apps to be discussed during our upcoming pre-conference workshop.

About the Speakers

Michelle Ranae Wild is the Founder/CEO of Brain Education Strategies & Technology. Michelle has been a professor in Coastline College’s Acquired Brain Injury Program for over 30 years. She developed the BEST Suite app to help with executive function challenges and has created a series of online app trainings for individuals with cognitive challenges, their caregivers, and the professionals who work with them.

Registration

The session is free if you do not want CME credits. Use the discount code NOCME in the payment portal at registration. If you want CME, you will have to pay $25 USD.

Registration links will be posted shortly.

CME Credits

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of CME Outfitters, LLC and the International Brain Injury Association. CME Outfitters, LLC is accredited by the ACCME to provide continuing medical education for physicians.

CME Outfitters, LLC designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Full List of other IPBIS Organized Webinars

For a full list of IPBIS organized webinars, please click here.

Webinar Home - Future and Past Webinars & CME